Kaila’s Komfort began in 2015, founded by then–14‑year‑old Kaila Mellos. What started as her Girl Scout Silver Award project quickly grew into a lifelong mission to bring comfort, understanding, and hope to others living with the same rare autoinflammatory disease she battles—Chronic Recurrent Multifocal Osteomyelitis (CRMO).
CRMO is a painful, rare bone disease that is most often diagnosed in childhood. By the time patients receive a diagnosis, many have already endured years of pain, medical testing, and uncertainty. Many also face additional conditions such as arthritis, psoriasis, Crohn’s disease, IBS, and other autoimmune or autoinflammatory disorders.
Kaila’s original idea was simple but powerful: create care packages for children and adults newly diagnosed with CRMO, offering comfort at a time when it is needed most. After completing her Silver Award, Kaila knew she wasn’t done. She transformed her project into a nonprofit organization dedicated to supporting CRMO families around the world.
Although our care‑package programs concluded in February 2026, our mission continues. Today, Kaila’s Komfort focuses on providing education, awareness materials, and personalized information packets to help families educate their loved ones, schools, sports teams, churches, and communities about CRMO. We also raise awareness, share resources, and host the annual worldwide CRMO Awareness 5K each October to build community and fund CRMO‑specific research.
Our Impact Since 2015
With the support of our community, we have been honored to serve CRMO Warriors and their families worldwide by providing:
CRMO Awareness 5K
In October 2026, we will proudly host our 10th annual worldwide CRMO Awareness 5K, with 100% of proceeds supporting CRMO‑specific research. Additional event details will be shared as the date approaches.
5K Proceeds Donated to CRMO Research
CRMO is a painful, rare bone disease that is most often diagnosed in childhood. By the time patients receive a diagnosis, many have already endured years of pain, medical testing, and uncertainty. Many also face additional conditions such as arthritis, psoriasis, Crohn’s disease, IBS, and other autoimmune or autoinflammatory disorders.
Kaila’s original idea was simple but powerful: create care packages for children and adults newly diagnosed with CRMO, offering comfort at a time when it is needed most. After completing her Silver Award, Kaila knew she wasn’t done. She transformed her project into a nonprofit organization dedicated to supporting CRMO families around the world.
Although our care‑package programs concluded in February 2026, our mission continues. Today, Kaila’s Komfort focuses on providing education, awareness materials, and personalized information packets to help families educate their loved ones, schools, sports teams, churches, and communities about CRMO. We also raise awareness, share resources, and host the annual worldwide CRMO Awareness 5K each October to build community and fund CRMO‑specific research.
Our Impact Since 2015
With the support of our community, we have been honored to serve CRMO Warriors and their families worldwide by providing:
- 1,600 CRMO Warrior Care Packages
- 280 Superstar Sibling Care Packages
- 355 Parent Care Packages
- 165 Warrior Pick‑Me‑Up Packages
- 570 Buzzy Pain Care Packages
(Buzzy is an FDA‑cleared medical device that helps reduce needle pain) - 1,700 We Finish Together race medals symbolizing strength, courage, and determination
- Shipping support for countless Rare Bears through our partnership with Rare Science
- Countless personalized songs for CRMO Warriors through our collaboration with Songs of Love
CRMO Awareness 5K
In October 2026, we will proudly host our 10th annual worldwide CRMO Awareness 5K, with 100% of proceeds supporting CRMO‑specific research. Additional event details will be shared as the date approaches.
5K Proceeds Donated to CRMO Research
- $41,625 – CRMO/CNO Research Fund at Vanderbilt University (2022)
- $25,000 – CRMO/CNO Research Fund at Seattle Children’s Hospital (2023)
- $100,000 – CRMO/CNO Research Fund at Seattle Children’s Hospital (2024)
(includes a $50,000 matching donation) - $100,000 – CRMO/CNO Research Fund at Seattle Children’s Hospital (2025)
(includes a $50,000 matching donation)
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Below is a short video to help you understand CRMO a bit more. So proud to know many amazing Warriors! Talk about courage and strength . . . which comes in so many forms . . . to talk about their experiences and trials, to spread awareness, to support one another and offer understanding, to be able to acknowledge that some days it can just be too much, to push forward despite the many incredible challenges, and to not let their challenges define them or take away their kind hearts, compassion and ability to bring light into the world!
Chronic Recurrent Multifocal Osteomyelitis (CRMO)
What is it?
CRMO (Chronic Recurrent Multifocal Osteomyelitis) is also known as CNO (Chronic Non-bacterial Osteomyelitis) CRMO/CNO is a rare and serious disease. It involves inflammation of one or more bones that can be chronic. Symptoms can come and go. CRMO/CNO is treated by pediatric rheumatologists.
Inflammation is a normal process. It is the way our immune system protects our bodies from infections and germs. It causes pain, redness, and swelling. In CRMO, however, there is no infection. Instead, the immune system wrongly attacks normal bone. This causes inflammation.
The cause of CRMO/CNO is unknown. Genetic and environmental factors may play a role.
CRMO/CNO is a “diagnosis of exclusion.” This means that other diseases must be ruled out before the diagnosis can be made. Generally, many tests are required, such as blood tests, X -rays, bone scans, MRI, and often a bone biopsy.
For more information on CRMO, please click here to be taken the the crmoawareness.org website.
Inflammation is a normal process. It is the way our immune system protects our bodies from infections and germs. It causes pain, redness, and swelling. In CRMO, however, there is no infection. Instead, the immune system wrongly attacks normal bone. This causes inflammation.
The cause of CRMO/CNO is unknown. Genetic and environmental factors may play a role.
CRMO/CNO is a “diagnosis of exclusion.” This means that other diseases must be ruled out before the diagnosis can be made. Generally, many tests are required, such as blood tests, X -rays, bone scans, MRI, and often a bone biopsy.
For more information on CRMO, please click here to be taken the the crmoawareness.org website.
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