Care packages for kids and adults with CRMO!
We're so excited to be able to offer care packages for children and adults in need of some love and comfort. What started as a Girl Scout Project has turned into a passion for me and my family. We are spreading love and helping other families in need.
Request a care package
You can request a care package here.
Each care package is created especially for that person based on their likes/interests, types of treatments they are receiving, etc. Care package contents are CRMO specific. For those that receive infusions, injections or blood draws and have a hard time with these, a product called Buzzy. I was given a Buzzy when I started having bi-monthly injections, and it really helped with the pain. I learned to calm down and deal with getting the shots because I no longer needed to worry about the pain involved in these with the Buzzy.
To date, we have sent out 1,280+ care packages. We would like to continue sending care packages, and donations play a big role in allowing us to continue this mission. We are so thankful that care package recipients, as well as others that believe in our mission, have offered to help us through donations, fundraising, and other means of support. We love the pay it foward idea. It feels good to be given a gift; and it feels even better to at some point be able to provide that same feeling to someone else walking a similar path.
CRMO Rare Bears
We are so excited to partner with RARE Science, Inc. in bringing Rare Bears to all CRMO Warriors around the Globe. If you are interested in receiving a Rare Bear made especially for you, complete and submit the form here: https://www.rarescience.org/?post_type=rare-science-partner&p=16714&preview=true.K aila's Komfort pays for the cost of shipping your special bear to you, so there is no cost to the recipient.
Superstar Siblings Program
Its not always easy being the sibling of a child with a chronic illness. I walk on both sides of the fence: I suffer from CRMO, and also have a sister who suffers from many very complex medical issues. Siblings often feel left out or even forgotten because their ill sibling requires more care and attention from parents. We want to be able to help make your superstar sibling feel special by sending them a mini care package. Click here to nominate your sister for a special Sibling Care Package. Click here to nominate your brother for a special Sibling Care Package. If you would like to make a donation of items for either sister or brother mini care packages, please contact us.
CRMO Warrior Mom's - Mini Care Packages
"A mother's love for her child is like nothing else in the world. It knows no law, no pity, it dares all things and crushes down remorselessly all that stands in its path." ~Agatha Christie
It takes a special Mom to raise any child, but a Warrior Mom to navigate the rare disease world! We would like to show CRMO Warrior Mom's a little love; all you need to do is nominate them here.
For care information on your Warrior Mom Bracelet, click here.
CRMO Warrior Dad's - Mini Care Packages
"A good father is one of the most unsung, unpraised, unnoticed, and yet one of the most valuable assets in our society." ~Billy Graham
Let's show our CRMO Warrior Dad's a little love; all you need to do is nominate him here.
"We Finish Together" CRMO Warrior Race Medals
All medals come from an awesome non-profit called, We Finish Together. They are donated by a community of runners, swimmers, singers, and triathletes all across the US, and then are decorated with an uplifting handwritten ribbon message and handmade note by our army of volunteers to remind CRMO Warriors that they are supported and cared for, and that they are not alone. Its a wonderful reminder that you are winning at getting through the trials and tribulations that CRMO can bring. Request a medal here.